Nisshaa's Life

Listen to your child's body and mind. If you notice any concerning changes in their involuntary movements, speech, or behavior, seek immediate medical attention. Don't hesitate, early diagnosis can make a world of difference. The Long Road to Diagnosis Diagnosing me as a child was a long and arduous journey. Hopping from hospital to hospital, hoping to find the right diagnosis, felt like chasing shadows. The ten years it took my parents to find the answer were agonizing, filled with countless appointments and frustrating dead ends. But their relentless pursuit of a diagnosis wasn't just about finding a label, it was about finding relief for their child. Despite the hardship, their unwavering determination ultimately made a world of difference. It secured the right treatment and opened the door to a brighter future for me. A Guide for Parents and Guardians While my parents, with their cultural background, initially held onto faith for my health, I knew I needed m...

Beauty of being oneself brings so much joy. If you are following me, then you will be aware of my body condition. I have dystonia and epilepsy, which is exhausting to handle both. You can tell that I'm in pain by the way my body arches toward my back. I wanted to write something today.  My dystonia really can destroy my day but I choose to be happy about it. If my dystonia goes crazy, I'm going to be even crazier.   Throughout the learning process of my journey, I learned one of the most important things in my life. Being in a happy state of mind despite my condition. My condition can be really bad but I choose to be happy with it. Why not right? And the joy I have accepting for who I'm.  We have been working for our daily survival and we forget to be happy with what we have. That creates so much misery within ourselves. We lose ourselves running after money, fame, status and so many other things. Let's breathe. Be grateful for this life, this body you ha...

I was reading and there's a line "it made us to be more grateful for all that we had". It just hit me. Yes, I'm grateful for all I have.  My family that prays for the well being of myself, my health, literally everything. Maybe it's easy to forget the things they did for our well being. Maybe we did forget. We forget the love shown in every way possible. Mother's food to survive for more than decades. Dad's protection over bad vibes.  Then there's our friends. Selflessly loved us for who we are. Without any expectations from us. Isn't it enough? Or are we expecting something more?  A body that functions well without conscious effort to pump the blood, to send direction or to breathe. Mentally and physically strong; body and mind.  And we have nature to feel loved by earth. I think there's nothing more beautiful than nature. The beach, forest, sunrise, sunset, rain, river, literally nature itself. Such a delight and blessings to witn...

Birthdays.  The day we are born. We get older and wiser each year. What's so special about this day? It's just another day. But here is where everything about you reveals. Should I start? How was it for me?  Since childhood I was never really interested in birthdays because I don't have friends to celebrate with me. I didn't mean to start my writing with a sad story. Just read along. It is supposed to be exciting, fun and happy. But I had this question with myself, why do we celebrate birthdays? Why is it important? What's in it? Since childhood I have had one wish that is to be healthy. And my wish never happened. Each year I'm inside the same body with the same illness. And my health just gets worse each year. So what's the point of wishing on my birthday?  Until I was twenty three years old, I was fighting to accept myself. I didn't like myself or whatever I'm thinking. I wanted to be ordinary. I wanted to be normal. I wanted to think ordinary. Bu...

My best girlfriend, YES I FOUND HER💚 Having a best friend is so important as well how both value and inspire each other as human beings.  A friend,  A friend like her is rare,  It's one in million, Luck was playing in my path, One in million. It is truly blessings to be with her. I didn't notice time running as we both were really having fun, talking, running, haha all the fun things.  As someone who is disabled, it's not easy to hangout with people. I refuse to hangout in my past because there was no support or care given to me. And I'm someone try to do my things myself but I need help.  A true friend will understand that and do everything to comfort them. And @ahnooshwinnie18 is someone like that. My girl. My best friend 💚 I'm out despite my conditions because of her. Such a sweetheart, my gift.  Now I'm writing this to create awareness of friendship. It's important to have friends. More so if you're disabled don't be shy to make fri...

Mistakes are most important in life. Without them we will never learn. I know I sound like old grandma but yes this is what I learned. I cannot write like how I'm writing now. My English teacher gave a C for my English essay. I am not good in any language. Brain disorder.  I learned mostly to write when I entered my Master. I write everyday. I wanted to find my own voice in my writing. I didn't want to copy any authors. I read many books to improve my writing skills. I also don't know how to communicate effectively with others. I learned human psychology (took course on that) to understand others. But I learned more about myself than others. I enjoyed every details and information about brain. How our brain wired since we born and how our thoughts impacts the neurons or cells in our body. All these are so exciting for me to learned.  I sound like pathetic human. I experiment my own life. How I can impact others. Everything impacts others. I didn't know. I wa...