My Support. The Wall

Support. I need support everywhere I go. I always need a wall, a chair, or a person to support me while walking, standing or even sitting. I know this might sound crazy but that's the truth. Some people might think why I'm always holding my friend's hand. Well, this is the reason.

I can walk alone without any support. However, there is a very high risk of falling and having terrible back pain. My bones are so fragile (sometimes it moves and I had to wait until it relocates back) and I need to be very careful. I always have the back pain cause I'm moving involuntarily. There were times my hand cramp because of involuntarily movement. Cramp is terrible pain.

Once my hand cramped during the exam and I just collapsed on the floor. It was so painful. My parents had to rush from work to bring me to the hospital on that day. It was a tiring day for them. I'm glad they always there for me.

I'm always surrounded by people who care about me. I'm never used to be alone because they worry about my health. It is just that... I always wanted to be an independent woman and do things by myself (like driving but had to depend) but nope..nah. My body never allow. However, I'm very grateful, I able to complete my goals with help of my family, friends and so many loving people. I have great friends who always there for me. Just a call and they are there. During my downs, only one thing runs in mind that is NEVER TO GIVE UP and I CAN DO THIS. Also, always think "All is well".

NEVER TO GIVE UP

Wall is what I needed the most :)

Comments

The Importance of Early Diagnosis: A Parent's Guide to Recognizing the Signs

Listen to your child's body and mind. If you notice any concerning changes in their involuntary movements, speech, or behavior, seek immediate medical attention. Don't hesitate, early diagnosis can make a world of difference. The Long Road to Diagnosis Diagnosing me as a child was a long and arduous journey. Hopping from hospital to hospital, hoping to find the right diagnosis, felt like chasing shadows. The ten years it took my parents to find the answer were agonizing, filled with countless appointments and frustrating dead ends. But their relentless pursuit of a diagnosis wasn't just about finding a label, it was about finding relief for their child. Despite the hardship, their unwavering determination ultimately made a world of difference. It secured the right treatment and opened the door to a brighter future for me. A Guide for Parents and Guardians While my parents, with their cultural background, initially held onto faith for my health, I knew I needed m...

Beauty of being oneself brings so much joy

Beauty of being oneself brings so much joy. If you are following me, then you will be aware of my body condition. I have dystonia and epilepsy, which is exhausting to handle both. You can tell that I'm in pain by the way my body arches toward my back. I wanted to write something today. My dystonia really can destroy my day but I choose to be happy about it. If my dystonia goes crazy, I'm going to be even crazier. Throughout the learning process of my journey, I learned one of the most important things in my life. Being in a happy state of mind despite my condition. My condition can be really bad but I choose to be happy with it. Why not right? And the joy I have accepting for who I'm. We have been working for our daily survival and we forget to be happy with what we have. That creates so much misery within ourselves. We lose ourselves running after money, fame, status and so many other things. Let's breathe. Be grateful for this life, this body you ha...

Being grateful for everything we have

I was reading and there's a line "it made us to be more grateful for all that we had". It just hit me. Yes, I'm grateful for all I have. My family that prays for the well being of myself, my health, literally everything. Maybe it's easy to forget the things they did for our well being. Maybe we did forget. We forget the love shown in every way possible. Mother's food to survive for more than decades. Dad's protection over bad vibes. Then there's our friends. Selflessly loved us for who we are. Without any expectations from us. Isn't it enough? Or are we expecting something more? A body that functions well without conscious effort to pump the blood, to send direction or to breathe. Mentally and physically strong; body and mind. And we have nature to feel loved by earth. I think there's nothing more beautiful than nature. The beach, forest, sunrise, sunset, rain, river, literally nature itself. Such a delight and blessings to witn...

Nisshaa's Life

Search This Blog