My Support. The Wall

Support. I need support everywhere I go. I always need a wall, a chair, or a person to support me while walking, standing or even sitting. I know this might sound crazy but that's the truth. Some people might think why I'm always holding my friend's hand. Well, this is the reason.

I can walk alone without any support. However, there is a very high risk of falling and having terrible back pain. My bones are so fragile (sometimes it moves and I had to wait until it relocates back) and I need to be very careful. I always have the back pain cause I'm moving involuntarily. There were times my hand cramp because of involuntarily movement. Cramp is terrible pain.

Once my hand cramped during the exam and I just collapsed on the floor. It was so painful. My parents had to rush from work to bring me to the hospital on that day. It was a tiring day for them. I'm glad they always there for me.

I'm always surrounded by people who care about me. I'm never used to be alone because they worry about my health. It is just that... I always wanted to be an independent woman and do things by myself (like driving but had to depend) but nope..nah. My body never allow. However, I'm very grateful, I able to complete my goals with help of my family, friends and so many loving people. I have great friends who always there for me. Just a call and they are there. During my downs, only one thing runs in mind that is NEVER TO GIVE UP and I CAN DO THIS. Also, always think "All is well".

NEVER TO GIVE UP

Wall is what I needed the most :)

Comments

The Importance of Early Diagnosis: A Parent's Guide to Recognizing the Signs

Listen to your child's body and mind. If you notice any concerning changes in their involuntary movements, speech, or behavior, seek immediate medical attention. Don't hesitate, early diagnosis can make a world of difference. The Long Road to Diagnosis Diagnosing me as a child was a long and arduous journey. Hopping from hospital to hospital, hoping to find the right diagnosis, felt like chasing shadows. The ten years it took my parents to find the answer were agonizing, filled with countless appointments and frustrating dead ends. But their relentless pursuit of a diagnosis wasn't just about finding a label, it was about finding relief for their child. Despite the hardship, their unwavering determination ultimately made a world of difference. It secured the right treatment and opened the door to a brighter future for me. A Guide for Parents and Guardians While my parents, with their cultural background, initially held onto faith for my health, I knew I needed m...

Relationship and Disability

Relationship and disability Many asked me about relationships and disability. Well let's talk about it. What is a relationship? It's two people independently coming together to live their best version out. It's not an escape from loneliness. It's two people sharing happiness, joy, and love to each other. It's actually about yourself with another person. It reflects you like a mirror. You will learn more about yourself in a relationship. The other is there as a blessing to be a witness of your transformation. But many fail to understand this and it creates such chaos. Relationship is definitely it's not meant to fight or argue all day long😂 Relationships are already a big task for a normal able body. Being disabled while having a relationship is another whole story. Can a disabled person have a relationship? Definitely can! And I think you should have! Because you will learn about others and so many beautiful values. As a disabled person I see th...

Being grateful for everything we have

I was reading and there's a line "it made us to be more grateful for all that we had". It just hit me. Yes, I'm grateful for all I have. My family that prays for the well being of myself, my health, literally everything. Maybe it's easy to forget the things they did for our well being. Maybe we did forget. We forget the love shown in every way possible. Mother's food to survive for more than decades. Dad's protection over bad vibes. Then there's our friends. Selflessly loved us for who we are. Without any expectations from us. Isn't it enough? Or are we expecting something more? A body that functions well without conscious effort to pump the blood, to send direction or to breathe. Mentally and physically strong; body and mind. And we have nature to feel loved by earth. I think there's nothing more beautiful than nature. The beach, forest, sunrise, sunset, rain, river, literally nature itself. Such a delight and blessings to witn...

Nisshaa's Life

Search This Blog